Since the European Court of Human Rights has given its final say on Charlie Guard’s life – that he is not allowed to go to the US for experimental treatment – the British infant’s fight to survive seemed to have come to an end.
Baby Charlie Gard suffers from a very rare and completely terminal illness. The illness is called mitochondrial disease, which deteriorates/destroys the brain and muscles.
Thanks to two congressmen, Reps. Brad Wenstrup (OH) and Trent Franks (AZ), proposing a bill to have Charlie become a US citizen, the sick boy now has the ability to receive the experimental treatment.
The two lawmakers stated their bill “will support Charlie’s parents’ right to choose what is best for their son, by making Charlie a lawful permanent resident in the U.S. in order for him to receive treatments that could save his life.”
Wenstrup and Franks continued: Should this little boy to be ordered to die — because a third party, overriding the wishes of his parents, believes it can conclusively determine that immediate death is what is best for him?
Every human life has dignity, including the lives of those who cannot speak up for themselves. When government is able to overrule a parent or guardian in determining a patient’s best interest, every vulnerable patient is put at risk.
We offer Connie Yates and Chris Gard our heartfelt support as they seek to care for their son.
The mission was accomplished!
According to Rep. Jeff Fortenberry (R-NE), Congress just passed an amendment that “grants permanent resident status to #CharlieGard and family so Charlie can get the medical treatment he needs.”
Now, however, it seems no matter what Charlie’s resident status is in the U.S.
The British claim that no matter his passport, they won’t let him leave; a judge said last Friday that the family would be breaking the law if they spirited Charlie out of the country without his permission, explaining, “It would be entirely wrong for him to be transferred without my being involved.” The hospital won’t even allow the Gard parents to remove Charlie from the hospital so he can die at home.
Right now Charlie is blind, deaf, and unable to move.
Do you think he will ever be able to have his fighting chance or even to pass away at his home, with his family?
This certainly seems like a case of cruel and unusual punishment, doesn’t it?