Charlie Gard is a 10-month-old child who was born with a deadly disease.
He suffers from mitochondrial disease, which deteriorates/destroys the brain and muscles.
Living in Britain, the parents Chris Gard and Connie Yates, did not have access to available treatments for their sweet little man.
Raising $1.6 million, parents had enough money to fly Charlie to the United States for an experimental treatment.
That’s when things got sticky. The hospital chimed in stating the treatment wouldn’t help Charlie, and would just prolong his suffering.
You see the hospital was telling the parents — whom have lived with their child’s suffering every day of his life — that they knew what was best for Charlie, which was for him to die.
If you’re a parent you can imagine the outrage these parents felt.
According to the Daily Wire: The European Court on Human Rights sided with the hospital and determined Charlie’s parents were barred from bringing their ill baby to the United States for such potentially life-saving treatment. Great Ormond Street Hospital for Children would instead kill Charlie by withdrawing all life support, the court ruled. Charlie has to “die with dignity.”
On Thursday, Gard and Yates “accused their son’s doctors of ‘rushing’ them and preventing all their family saying goodbye this weekend in a video message for their thousands of supporters,” notes The Daily Mail. Not only were the parents denied the right to continue to fight for their son’s life, but the hospital wouldn’t allow them to take the boy home to die, or even go to hospice, they said. He must die in the hospital, they were told.
After Charlie’s parents’ initial request to have more time with their child was rejected, they were finally told the hospital had “agreed to a give us a bit more time with Charlie.” That amount of time has not been disclosed, despite the parents’ claim in their video that Charlie is still fighting and “stable.”
“We have been in talks today with Great Ormond Street and they have agreed to give us a little bit more time with Charlie,” said Yates.
“We are really grateful for all the support from the public at this extremely difficult time,” she said.
“We promised our little boy every single day that we would take him home,” they explained.
“We want to give him a bath at home, put him in a cot which he has never slept in but we are now being denied that. We know what day our son is going to die but don’t get a say in how that will happen,” said Gard.
“Charlie will die tomorrow knowing that he was loved by thousands – thank you to everyone for all your support,” the parents said, thanking “Charlie’s Army”: those people who’ve donated and supported.
“It seems the video Connie and Chris released yesterday made the hospital reconsider,” said a friend of the family to The Daily Mail.
“After everything the family have been through they deserve this. To be able to prepare properly to let Charlie go has already given the parents much comfort,” the source added.
“Gard and Yates, who are in their 30s, launched a fundraising appeal to help pay for doctors’ bills in the US. It reached a £1.2m target before the initial high court trial and has now topped £1.3m, attracting more than 83,000 donations,” reports The Guardian.
Since Charlie never got ‘his chance’, according to the parents the money will go to a charity that focuses on mitochondrial disease.